Investigating fatigue in kidney transplant recipients

We are inviting kidney transplant recipients 18 years of age or older to take part in our online study. Participants must reside in the UK and be able to complete the survey in English. People who received a pancreas transplant at the same time as their kidney transplant will not be eligible to participate on this occasion.

The purpose of the project is to understand the nature and impact of fatigue (extreme and persistent tiredness/exhaustion) among people who have received a kidney transplant and to find out what factors might explain differences in severity between people.

We know from research that fatigue (extreme and persistent tiredness/exhaustion) is common in people living with chronic kidney disease, particularly those who receive dialysis. However, sometimes fatigue continues even after receiving a kidney transplant. Several factors are likely to explain fatigue levels including psychological factors such as people’s beliefs about their fatigue levels and what they do to manage fatigue.

The study is being conducted as part of an MSc. in Health Psychology at King’s College London. All participation is online. If you choose to take part, you can complete the survey at the time and place of your choosing. You will need internet connection and a computer, tablet, or smartphone to access the study.

First, you will be asked to go through the information sheet. You will then be asked to complete a short screening survey to confirm that you meet the criteria to participate in the study. This will be followed by a consent form so that you can confirm that you agree to participate in the study. After this, you will be able to progress to the main survey questions.

If you meet the criteria for participation and decide to take part in the study, you will be asked to complete a survey gathering information related to:
1) your sociodemographics (such as age and gender, etc.)
2) your transplant and kidney disease history
3) how fatigued you feel and how much it affects your day-to-day life
4) your thoughts, emotions, and behaviours in response to fatigue.

We intend to publish the results of the study in an academic journal. Parts of the study will be submitted as an educational project as part of the MSc Health Psychology course at King’s College London. After the study is finished, we will share what we found via social media and will send a summary of the findings to all participants who express interest.

This study has been granted full ethical approval by the PNM Research Ethics Subcommittee at King’s College London. Ethical Clearance Reference Number: HR/DP-20/21-22970

The survey takes approximately 15-20 minutes to complete. Participation is at one time point only. To thank you for your contribution, you will be offered the opportunity to enter into a prize draw to win one of ten Amazon gift vouchers of £20.

To read the study information sheet and to take part, please follow this link: https://tinyurl.com/KTxFatigueStudy.

If you have any questions about the study, or require any further information, contact Imogen on imogen.sands@kcl.ac.uk.

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