LoCKDown Study PPI Group

LoCKDown – The long-term impacts of COVID-19 on people with chronic kidney disease and on people with previously normal kidney function.

The LoCKDown study is recruiting patients, carers, and members of the public to be Patient and Public Involvement (PPI) partners.

This study, funded by the National Institute for Health Research (NIHR), is investigating whether people with kidney disease and COVID-19 are more likely to develop long-term complications such as kidney failure, heart problems and blood clots, while we also aim to learn whether survivors of COVID-19 are more likely to develop new kidney disease.

LoCKDown is being undertaken on the OpenSAFELY platform (https://www.opensafely.org/). OpenSAFELY was created at the outset of the COVID-19 pandemic as a collaboration between the University of Oxford and the London School of Hygiene & Tropical Medicine (LSHTM), to deliver urgent, high-quality COVID-19 related research using electronic health records (GP records combined with data from other sources such as hospital records, COVID-19 test results etc).

We are looking for a range of PPI partners, including people who:

  • Experienced symptoms of COVID-19
  • Have chronic kidney disease
  • May be experiencing symptoms of long-COVID
  • Have family members or friends affected by COVID-19 or chronic kidney disease
  • Are interested in the use of electronic health records for research
  • Are interested in this area of study


We ask that you be able to commit to at least two meetings a year over the next three years and that you will be able to carry out specified tasks within your skill set as and when required. At present, all meetings are planned to take place online but we hope to maintain some flexibility over this in the future. You do not need to have any previous PPI experience and there will be opportunities to learn from those who do. We plan to commence with a series of live webinar induction sessions in October 2021.

We will provide:

  • Training according to your personal development needs
  • Honoraria of up to £150/year for involvement in tasks/activities


How to become a PPI partner
If you are keen to join, please fill out the following 10-minute questionnaire. The purpose of this questionnaire is to learn more about you and your PPI interests and experiences so that we can improve as we go along. Please note that all responses are optional except for your name and email, so do not feel obliged to fill in anything you don’t want to disclose. All responses will be stored securely and confidentially according to EU General Data Protection Regulation (GDPR). Individuals’ responses will not be shared without explicit consent. A summary of responses will be generated solely for the purposes of quality improvement of the PPI process.


Other opportunities
We may be overwhelmed with interest and therefore unable to include everyone in the final PPI group. However, we would like to stay in touch about how the study is progressing and would also be grateful if you could allow us and our colleagues to contact you in the near future about other potential opportunities.

Who to contact
If you have any questions or require any further information, please do not hesitate to contact Dr Viyaasan Mahalingasivam (viyaasan.mahalingasivam1@lshtm.ac.uk).

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