Measuring the family impact of a person’s kidney disease

A person’s kidney disease can affect the lives of their partners and family members, but this important impact is often ignored. Researchers at Cardiff University have created a simple questionnaire to measure this impact.

They need your help to test this questionnaire before it can be used routinely to better understand and care for the health and social needs of partners and families. The researchers invite people affected by kidney conditions and their partners or other family members (aged at least 18 years) to complete this 5-minute survey.

In the survey, you will be asked some basic questions about yourself and partners or family members answer the FROM-16 questionnaire and also another standard questionnaire.


This study will run from April to November 2021 and has Cardiff University ethical approval SREC reference: 21/19.

The survey can be completed directly at the link above, but if you have any questions or comments regarding this or would like to provide any feedback, please contact Rubina Shah via email Thank you.

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