We would like to know about your experiences of involvement or engagement with healthcare professionals and organisations, as either a patient or carer.
Through our commitment to “develop quality patient and public involvement and engagement (PPI/E) activities; working with patients, carers and healthcare professionals to help improve their quality of life and work” we have created a survey and are asking patients and carers to take 10 to 15 minutes to complete, to help us provide an education programme that supports patients and carers to gain the skills needed to have a productive and meaningful experience in their involvement and/or engagement when working with healthcare staff. This will be working with other kidney charities or organisations or conducting activities that are being missed.
We will use the results from this and other patient survey’s/questionnaires to custom design a programme centred around patient/carer needs.
Please note: With the current Coronavirus situation in the UK, we are looking to currently provide ‘online’ activities only. Whilst appropriate, informative, and helpful information online is an aim of KPIN, offering face to face training will be available once the situation allows it.
- direct experience of Chronic Kidney disease
- in the therapy stages of Advanced Kidney Disease (Pre-Dialysis), Haemodialysis (unit and home), Peritoneal Dialysis or have been transplanted
- been involved or have a desire to be involved in working with other patients or carers or healthcare professionals on renal projects such as Service Design, Quality Improvement, Research etc.
It does not matter how little or how much involvement you have had. We are interested in your views.
Completing the survey
Whilst you can add your details should you wish to, the survey is voluntary and anonymous.
We will keep the completed surveys for 6 months and then delete them.
For further information please take a look around this website