Published Guidance


Published Guidance

Selected publications

The following can be read by patients and professionals.

National Standards for Public Involvement in Research – developed by a UK-wide consortium to provide people with clear, concise benchmarks for effective public involvement alongside indicators against which improvement can be monitored. An excellent framework to follow when considering patient involvement.

Visit Sense about Science for Public Engagement: A Practical Guide

Visit Arthritis UK for a Patient & Public Involvement – A researcher’s guide

Download/view the PFMD patient-engagement-quality-guidance (The PFMD Guidance by PFMD is licensed under CC BY-NC-SA 4.0)

Visit EPFIA for a guide for pharmaceutical firms on Working Together with Patient Groups


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