Unexplained inflammation in dialysis studies

We are looking for patients to be involved in three research studies (LiMON, Beta Glucan and Fibroscan) that are investigating the impact of gut leakiness and impaired liver function on levels of blood inflammation in people treated with dialysis. We are very interested in the opinions of patients regarding the design, applicability and usefulness of these studies from a kidney patient perspective.

We are interested in obtaining a feasibility assessment of these studies from a patient perspective and also obtaining a ‘patient lead’ for this study.

We want to make changes to these studies based on patient feedback to ensure that the study procedures are relevant and acceptable. Initial involvement would include reviewing the plain English summaries of the studies and providing comments on the research proposed. These projects are being submitted to the National Institute of Health Research and Kidney Research UK for full study funding and we are looking for a ‘patient lead’ for these studies who we would co-opt onto these funding bids as a co-applicant.

The study team are based at the East and North Hertfordshire NHS Trust which covers care of kidney patients for the majority of Hertfordshire, Bedfordshire and West Essex. Study meetings are currently being held virtually and there will be regular meetings with the chief investigator of the study where patients will be given information and training regarding the studies.

Please find the plain English summaries for all three studies linked below:

 

Time commitment would involve approximately 2 x 1 hourly meetings prior to the start of the studies then 1 hourly meetings 3-monthly during the recruitment period for the studies (which will in total last approx. 12-18 months).

If this study receives funding we will remunerate KPIN patient members for any time/travel costs incurred in line with the NIHR guidance on “Reward and recognition for public contributors – a guide to the payment of fees and expenses”. We may also be able to remunerate patients if funding is not successful if the local budget allows for this.

If you are interested in participating in this opportunity, please contact Oscar Swift via email oscar.swift@nhs.net before July 22nd 2021.

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