{"id":1483,"date":"2020-11-18T10:41:10","date_gmt":"2020-11-18T10:41:10","guid":{"rendered":"https:\/\/kpin.org.uk\/?page_id=1483"},"modified":"2021-02-03T14:04:31","modified_gmt":"2021-02-03T14:04:31","slug":"kidney-patient-and-carer-involvement-experiences","status":"publish","type":"page","link":"https:\/\/kpin.org.uk\/new-to-patient-involvement\/kidney-patient-and-carer-involvement-experiences\/","title":{"rendered":"Kidney Patient and Carer Involvement Experiences"},"content":{"rendered":"\t\t
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Introduction<\/h2>\n

This page and supporting pages and links, outline some of the involvement experienced by patients or carers within kidney service development programmes e.g. Quality Improvement and\/or Research.<\/p>\n

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 The background for these will be based around the Kidney Services: Improving at Scale report which <\/span>shares the experiences of those involved in four scaled up quality improvement programmes<\/b>. It provides information for those planning to take a locally developed and proven intervention to the next step of spreading to other locations by specifically considering five themes.<\/span><\/p>\n

This was supported by a Kidney Quality Improvement Network (KQuIP) Webinar which can be accessed here<\/a>.<\/p>\n

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This has been followed by three 1 hour KPIN Webinars titled \u201c<\/span>Stepping into your shoes: working together to improve kidney services\u201d<\/strong>
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Topics included:<\/em><\/strong><\/p>\n

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  1. Working together to understand what matters to patients and their families (conducted on 27 October 2020) <\/em><\/li>\n
  2. Working together to sustain meaningful patient involvement in developing your kidney service or project (conducted on 10 November 2020) <\/em><\/li>\n
  3. Working together to measure the difference that meaningful Patient and Public Involvement (PPI) has made to your kidney service or project – Currently being run on the 15th of December (see this link<\/a>)<\/li>\n<\/ol>\n

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    The first<\/strong> webinar looked at <\/em>\u201cWorking together to understand what matters to patients and their families\u201d
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    Outline:<\/strong>  In light of COVID-19 many patients could not rely on their usual forms of communication with their renal unit, and many changes were made to kidney services without asking patients or their families.  This seminar focuses on how patients and health care professionals can work together to set up and sustain a successful diverse Patient and Public Involvement (PPI) group, that supports health care professionals to hear what matters to patients and their families<\/em><\/p>\n

    Subjects covered included:<\/em><\/p>\n