What is KPIN
The kidney Patient Involvement Network (KPIN) is a network of kidney (renal) organisations, charities and individuals committed to quality patient and public involvement and engagement (PPI/E) who are willing to work collaboratively on initiatives to improve standards and develop patient leaders of the future.
KPIN was founded in 2017 by:
Kidney patient charities/support groups
Greater Manchester Kidney Information Network (GMKIN)
Kidney Care UK
Kidney Research UK
National Kidney Federation
Polycystic Kidney Disease Charity
Kidney organisations
British Renal Society (BRS)
Kidney Patient Quality Improvement Partnership (KQUIP)
The Renal Association
UK Renal Registry
Other organisations
Our Objectives
- To embed the patient and carer’s voices and experiences into the planning, delivery and evaluation of health and care services, research and quality improvement initiatives, including service commissioning and health policy.
- To develop adapt and support the application of national quality standards for the involvement of service users and carers.
- To create a network sharing good practice and resources, strengthen existing networks and build an infrastructure that connects and coordinates patient involvement, promoting user and carer interests.
What we’d like to happen:
- More patients and carers understand and believe that they are better informed, know who to approach and can get involved.
- More patients and carers play an active role in activities and roles that include acting as advisors, in communications activities, taking part in research and service improvement projects and on decision making panels and committees.
- More health researchers, practitioners, policy/guideline developers and other stakeholders are inspired, confident and better equipped to involve patients and carers in their work.
Membership & Network Partners
Core working group
Mr David Coyle, Patient Leader representing NIHR Devices for Dignity MIC co-chairs with Prof Paula Ormandy, BRS Vice President Research.
Mr Paul Bristow & Mrs Fiona Loud, Kidney Care UK
Mr Michael Nation & Ms Sarah Harwood, Kidney Research UK
Mr Andy Henwood, patient Leader & Professor Martin Wilkie, ShareHD (Shared Haemodialysis Programme)
Ms Tess Harris, PKD Charity
Ms Andrea Brown, National Kidney Federation
Professor Nicki Thomas, London South Bank University
Dr Rachel Gair, Kidney Quality Improvement (KQUIP) representative
Affiliations
UK Kidney Research Consortium (UKKRC)
KPIN is a BRS special Interest Group (SIG)
We continue to build affiliations with other key groups across the renal community
Resources and funding
Members of KPIN give their time and share knowledge, experience and best practice examples on a voluntary basis. However, the working group recognises that a small secretariat will be needed to support our work going forward.
We are in the process of submitting grants to secure funding for KPIN going forward.