The following patients and professionals are working on developing KPIN on a part time basis* or have graciously given their time to the network.
Mr Andy Henwood, KPIN Patient Involvement Facilitator (KPIN Co-Chair)*
Andy is a transplanted Kidney Patient after spending 4 years on Haemodialysis. Andy has been a patient Representative at his hospital unit as well as a patient lead in a number of regional and national programmes; the latest being the Health Foundation Funded Scaling Up programme called Shared Haemodialysis Care. “I am a keen advocate of patients having a greater understanding and involvement in their care, this includes working with health care professionals to help improve our quality of life and their quality of work. We are now creating a patient involvement network where kidney patients and carers with experience, can share their engagement and involvement experiences and learn from each other as well as promote and encourage best ‘co-produced’ practices”
Professor Paula Ormandy, University of Salford (KPIN Co-Chair)
Paula is a Professor in Long Term Conditions Research, originally a renal nurse now a health service researcher. Her research interests include self-management, patient education and information provision using digital and social media. She is a founding member of the Kidney Information Network (gmkin.org.uk) and co-chair KPIN. “The KPIN network provides new and exciting opportunities for people managing chronic kidney disease and carers so they can influence and improve the quality of services and research.”
Laura joins KPIN as Patient Facilitator. After suffering an acute kidney injury in 2022, Laura is now on haemodialysis at her local centre and hoping to receive her husband’s kidney in the next year. She is passionate about raising awareness about kidney disease and is a keen patient advocate. Outside of KPIN Laura has two sons, enjoys cooking and walking.
My name is Mohammed Islam I am 48 years old, my journey from a renal perspective started in 2010 when I was diagnosed with AKI. I began on peritoneal dialysis for a year and my brother very kindly donated one of his kidneys to me. This all worked fine until the end of 2020, I ended up in hospital and my kidney failed. I have now started on haemo-dialysis, I have been on this method of treatment coming up to 3 years now.
