What is KPIN?
The Kidney Patient Involvement Network (KPIN) is a network of individuals, kidney (renal) organisations and charities committed to quality patient and public involvement and engagement (PPI/E) who are willing to work collaboratively on initiatives to improve standards and develop patient leaders of the future.
What is patient involvement?
When we refer to ‘patients’, we also mean carers and family members of those affected with kidney disease. Some organisations also use the term ‘public involvement’ or ‘public and patient involvement’ abbreviated to PPI.
‘Involvement’ can mean anything from giving feedback about your local dialysis unit or joining a committee, to advising on a project or helping design a research study.
For patient involvement to be meaningful it needs to make a difference to the lives and experiences of the service users involved – i.e. kidney patients and their families.
How can I join?
There are two different types of membership – patients/carers and professionals. This allows us to tailor the information we send to you.
I am a patient/carer, why should I join KPIN?
KPIN will provide you with access to a wide range of involvement opportunities that you can choose to get involved with. This could include:
If you are new to patient involvement, we will provide training and support to help you feel confident that your contribution is valuable, and that your involvement is a meaningful and positive experience.
If you have prior experience of patient involvement, we will provide you with the opportunity to share this experience in order to help others new to involvement.
I am a professional, why should I join KPIN?
If you are new to patient involvement we can provide you with training and support to develop your projects.
If you already have experience, we can help you to access a more diverse patient audience and connect you with various support organisations.
What happens if I join KPIN as a patient/carer?
What happens if I join KPIN as a professional?
How will you contact me?
We will contact you by email.
You can opt-out at any time or change your preferences using the online form
You can contact us at any time by email: info@KPIN.org.uk
We look forward to you working with you.
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