Working Group Advisors

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Working Group Advisors

Paul Bristow KCUKMr Paul Bristow, Kidney Care UK

Following a successful career in Senior Marketing and Communication roles in the private sector, including a FTSE 100 company, Paul has spent over 10 years working in national charities with a particular focus on long term health conditions, disability and disadvantage, as well as mental health. These roles have included Director of Marketing and Communications at Shaw Trust as well as Marketing and Corporate Communications Director at the Mental Health Foundation.

Paul has been at Kidney Care UK since 2014, where he joined as a member of the Senior Management Team to head up and develop the marketing and communications function as well as developing an organisational strategy for the Charity. As Director of Marketing and Communications, Paul was responsible for rebranding the Charity and developing a new 5 year strategy, including the development and promotion of a range of new patient support services to ensure that the patient voice is at the heart of improvements in health and care services in the UK. Paul was appointed Chief Executive in May 2020, after previously holding the roles of Deputy and then Interim Chief Executive.

 

Fiona LoudMrs Fiona Loud, Kidney Care UK

Fiona is Policy Director of Kidney Care UK, working with policymakers and others in campaigning for the organ donation opt-out law, improving access to transplantation and patient choice. Previously Director of the Kidney Alliance, she co-authored the review of kidney care, Kidney Health: Delivering Excellence. She works with many groups to improve care standards for kidney patients, such as dialysis choice or patient transport. She set up and chairs the UK Renal Registry patient council and been a member of many NICE kidney guideline groups. She is lay chair of Watford hospital organ donation committee and vice chair of her local kidney patient association at the Lister hospital.

Fiona spent 5 years on dialysis after her kidneys failed, before a transplant from her husband in 2006. She is a Fellow of the British Renal Society and was one of the Health Service Journal Top 50 patient leaders. Her Lancet profile: https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(17)31673-2/fulltext

 

Dela

Ms Dela Idowu, Gift of Living Donation

Dela is the founder of Gift of Living Donation an organisation that works to raise awareness of living kidney donation in the Black Community. She is the author of More Than a Match, a book she wrote after coming forward as a living kidney donor for a family member. She is also the co-writer and producer of We Are Family, an educational film on a living kidney donation. She was a member of the Living Donation and Kidney Transplantation 2020 Strategy Implementation Group and is a member of NBTA. She is passionate about improving the quality of life for black patients with CKD through living kidney donation here in the UK and in Nigeria.

 

 

Maddy Warren, [Details to be entered]

 

Amjid Ali, Partner and Project Lead, ‘Transplantation in Islam’ [Awaiting Photo]

Amjid was diagnosed with Chronic Kidney Failure in Oct 1987 at the age of 20 and spent 23 years on home dialysis before receiving a living related kidney donation in May 2011.  Amjid is a retired Senior Manager, HSBC.  He is now Partner and Project Lead, ‘Transplantation in Islam’ initiative for NHS Blood and Transplant, and BAME Engagement & Inclusion for Kidney Care UK. His perseverance and hard work over the course of the last 5 years has led to the development of an updated religious edict (Fatwa) on ‘Transplantation and Organ Donation in Islam’.  Amjid also is Chair, Strategic Independent Advisory Group for Avon & Somerset Constabulary.

David Coyle, National Kidney Federation

 

Tracey Rose, [Details to be entered]

 

Professor Martin Wilkie, ShareHD (Shared Haemodialysis Programme)

Consultant nephrologist at Sheffield Teaching Hospitals NHS Foundation Trust; honorary professor of nephrology University of Sheffield; home dialysis clinic for 25 years; lead the Shared Haemodialysis Care programme; Editor in Chief of Peritoneal Dialysis International, Chief Investigator UK Catheter Study, Co-Chair of ISPD/Euro PD 2020.​

 

 

 

Mr Michael Nation, Kidney Research UK

 

Rachel Gair, Kidney Quality Improvement (KQUIP) representative

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