Mr Paul Bristow, Kidney Care UK
Following a successful career in Senior Marketing and Communication roles in the private sector, including a FTSE 100 company, Paul has spent over 10 years working in national charities with a particular focus on long term health conditions, disability and disadvantage, as well as mental health. These roles have included Director of Marketing and Communications at Shaw Trust as well as Marketing and Corporate Communications Director at the Mental Health Foundation.
Paul has been at Kidney Care UK since 2014, where he joined as a member of the Senior Management Team to head up and develop the marketing and communications function as well as developing an organisational strategy for the Charity. As Director of Marketing and Communications, Paul was responsible for rebranding the Charity and developing a new 5 year strategy, including the development and promotion of a range of new patient support services to ensure that the patient voice is at the heart of improvements in health and care services in the UK. Paul was appointed Chief Executive in May 2020, after previously holding the roles of Deputy and then Interim Chief Executive.
Mrs Fiona Loud, Kidney Care UK
Fiona is Policy Director of Kidney Care UK, working with policymakers and others in campaigning for the organ donation opt-out law, improving access to transplantation and patient choice. Previously Director of the Kidney Alliance, she co-authored the review of kidney care, Kidney Health: Delivering Excellence. She works with many groups to improve care standards for kidney patients, such as dialysis choice or patient transport. She set up and chairs the UK Renal Registry patient council and been a member of many NICE kidney guideline groups. She is lay chair of Watford hospital organ donation committee and vice chair of her local kidney patient association at the Lister hospital.
Fiona spent 5 years on dialysis after her kidneys failed, before a transplant from her husband in 2006. She is a Fellow of the British Renal Society and was one of the Health Service Journal Top 50 patient leaders. Her Lancet profile: https://www.thelancet.com/jour
Ms Dela Idowu, Gift of Living Donation
Dela is the founder of Gift of Living Donation an organisation that works to raise awareness of living kidney donation in the Black Community. She is the author of More Than a Match, a book she wrote after coming forward as a living kidney donor for a family member. She is also the co-writer and producer of We Are Family, an educational film on a living kidney donation. She was a member of the Living Donation and Kidney Transplantation 2020 Strategy Implementation Group and is a member of NBTA. She is passionate about improving the quality of life for black patients with CKD through living kidney donation here in the UK and in Nigeria.
Maddy is the Director of a consultancy specialising in Community Engagement, Health Policy and Talent Development for a range of clients in the healthcare and finance sectors. She runs Engagement and Advocacy Programmes for Quanta Dialysis Technologies and Pathfinder Medical, and is a director of Make Someone Smile. She is an expert advisor for a wide range of quality improvement, research and PPI initiatives, including the Renal Clinical Reference Group (advising commissioners), the Renal Services Transformation Programme, the Global Renal Exercise Group, the UK Kidney Research Consortium, the UK Organ Donation and Transplantation Research Network, KQUIP and the Nightlife Study. She personally supports a large number of dialysis patients and is a founding peer supporter for the Young Adult Kidney Group.
Maddy is a two times TEDx speaker, has presented at renal conferences around the world and has written for national and industry press. She is also the co-creator of “Survivors: Life Unfiltered”, a photography exhibition sharing stories of people living with kidney disease.
Prior to starting her consultancy, she was a Vice President in Global Talent Development at Goldman Sachs. Maddy spends her spare time fitness training and jumping out of planes with her formation skydiving team “Fireflies”, and for the last 22 years since the age of 14 she has been dialysing herself at home as she is not able to have a kidney transplant.
David Coyle, National Kidney Federation
Tracey Murray, Head of Strategic Planning and Change, (Kidney Research UK (KRUK))
Tracey has worked and volunteered for healthcare and children’s charities and has experience in leading and developing volunteering, peer education and youth participation programmes.
She is passionate about providing more opportunities for people living with, affected by and at risk of kidney disease to be involved in research development, delivery and dissemination.
Professor Martin Wilkie, ShareHD (Shared Haemodialysis Programme)
Consultant nephrologist at Sheffield Teaching Hospitals NHS Foundation Trust; honorary professor of nephrology University of Sheffield; home dialysis clinic for 25 years; lead the Shared Haemodialysis Care programme; Editor in Chief of Peritoneal Dialysis International, Chief Investigator UK Catheter Study, Co-Chair of ISPD/Euro PD 2020.
Rachel Gair, Kidney Quality Improvement (KQUIP) representative
Brett Dowds, Kidney Wales
Brett is the Information and Support Manager for Kidney Wales. His role includes working with patients directly as well as with clinical teams and the Welsh Renal Network to ensure the patient voice is heard.
Kidney Wales provides information, guidance, and a community of support to people and families suffering from the effects of chronic kidney disease. We do this by:
- Delivering education and awareness-raising events and campaigns.
- Providing grants for urgent financial assistance and projects.
- Working with partners and the NHS to invest in targeted care for kidney patients.
- Investing in a legacy of research.
In addition to working for the charity, Brett is also a longterm kidney patient who has been on all treatments and is currently on nocturnal home haemodialysis.