This page and supporting pages and links, outline some of the involvement experienced by patients or carers within kidney service development programmes e.g. Quality Improvement and/or Research.
The background for these will be based around the Kidney Services: Improving at Scale report which shares the experiences of those involved in four scaled up quality improvement programmes. It provides information for those planning to take a locally developed and proven intervention to the next step of spreading to other locations by specifically considering five themes.
This was supported by a Kidney Quality Improvement Network (KQuIP) Webinar which can be accessed here.
This has been followed by three 1 hour KPIN Webinars titled “Stepping into your shoes: working together to improve kidney services”
The first webinar looked at “Working together to understand what matters to patients and their families”
Outline: In light of COVID-19 many patients could not rely on their usual forms of communication with their renal unit, and many changes were made to kidney services without asking patients or their families. This seminar focuses on how patients and health care professionals can work together to set up and sustain a successful diverse Patient and Public Involvement (PPI) group, that supports health care professionals to hear what matters to patients and their families
Subjects covered included:
(see video via this link) – [to be added]
The second webinar looked at “Working together to sustain meaningful patient involvement in developing your kidney service or project“.
Outline: It is important that patients or carers undertaking PPI activities feel valued and that their voice is heard. This seminar focuses on how to sustain meaningful patient involvement in kidney services, quality improvement or research
Subjects covered include:
(see video via this link)) – [to be added]
The third and final webinar in this series looks at “Working together to measure the difference that meaningful PPI has made to your kidney service or project“
This webinar is due to be conducted on the 15th of December; why not enroll? For further details click here.
Outline: It is important to think about how involvement of patients and carers has made a difference to your service or project. This seminar will focus on how to measure the impact of PPI in kidney services, quality improvement or research
Topics covered will include:
As kidney patients and carers, collectively we have a considerable amount of ‘patient involvement’ experience, at various levels.
For more information click here
To support the above elements of Patient and Carer Involvement, we are trying to provide some personal examples of other patient/carer experiences across a variety of kidney patient involvement activities.
Andy is a York patient and has been an involved patient on and off for a considerable number of years. Andy outlines his experiences as a hospital patient representative, a patient lead on two Shared Care programmes, his role in the development of KPIN and more recently as a patient lead for a Kidney Patient Peer Support Network at York.
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