Content
Welcome to the KPIN Training and Development resource
As you are hopefully aware by now, KPIN is very much about helping those kidney patients* who wish to get more engaged or involved in developing Kidney Services through Quality Improvement, Research or Service Development. We aim to try and achieve this by helping to;
In addition, we hope to be able to support patients that are already involved.
The patient and public involvement we are talking about entails development activities for the direct benefit of patients of being carried out ‘with’ or ‘by’ them, rather than ‘to’, ‘about’ or ‘for’ them.
Patient engagement and involvement encompasses the various ways in which the activity and benefits of Quality Improvement, Research and Service Development can be designed/developed in a two-way process, known as Co-Production. Engagement encourages health care professionals to listen and interact with patients.
Throughout these resources, our aim is to;
Note: KPIN is not a training provider and is not in competition with any organisation or entity to provide any training or training materials. We are however keen to develop, collect resources including training and development materials, that are designed by patients and where it is considered these resources could be viewed and adapted for use by other patients.
Simple themes we may look to provide include;
All these themes/sessions will conclude with a discussion on how KPIN can help further.
*The word “patient” can refer to people with kidney disease (receiving advanced kidney care, on dialysis treatment or transplanted), and people who use kidney health services. The word “carer” refers to a family member, friend or other person who helps to support or take care of a person with kidney disease. Alongside this, our information may also be relevant to NHS Professionals and people from organisations that represent kidney patients or carers, as well as to members of the general public. Patient and Public Involvement/(Engagement) is often abbreviated to PPI/(PPI/E)
EUPATI The European Patients’ Academy (EUPATI) is a pan-European multi-stakeholder consortium which trains patient experts on medicines development, clinical trials, medicines regulations, health technology assessment. Additionally, EUPATI offers and maintains the Toolbox on Medicine Development, and coordinates a network of national platforms for patient advocates.
Cochrane Evidence Essentials Free online resource offering an introduction to health evidence, and how to use it to make informed health choices.
KPIN is on the most popular social networks.